Home care in dementia: The views of informal carers from a co-designed consultation

Sight and Mind were invited to provide their expert knowledge as part of the research being carried out within the Dementia Person Aligned Care Team (DPACT) study which is developing a dementia support worker intervention, based within GP surgeries, for people living with dementia and their carers. The aim of the intervention is to improve the physical and emotional wellbeing and quality of life of the person with dementia and their carer. The research is funded by the National Institute for Health Research School for Social Care Research (NIHRSSCR).

The Patient and Public Involvement (PPI) group consult with people with dementia, carers and former carers to ensure that the needs of people affected by dementia are considered in the research process. Continuing this work during COVID-19 has been challenging for the researchers so Sight and Mind were delighted to meet with the North West Team, virtually over Zoom, to advise and prepare the researchers on how to support people living with dementia and sensory impairment during remote interviews. Insights from these meetings contributed to the development of a remotely delivered version of the intervention.

To read the full paper on carers’ views of home care for dementia from the co-produced survey with informal carers download the report.